Words could never express how Grateful we are to Appel Orthodontics! When we couldn’t find an orthodontist in New Jersey to treat Riley, Josh Bresler from Doc Breslers Cavity Busters reached out to Andrew Appel. Without hesitation, Andrew said they could fix Riley’s teeth. 2 years later and Riley has Beautiful straight teeth!! Thank you! Thank you! Thank you! 🩵
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤️♻️💜
Happy 16th Birthday to Riley!!!
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior still #BeatingtheOdds Everyday.
❤️♻️💜
Tonight Riley is resting in the CPRU, and will be discharged tomorrow.
11 years ago at this time we were just minutes away from Riley going to the OR for his heart and bilateral lung transplant! Nothing could have prepared us for the next 5 months or even the next 11 years that followed. One thing is for sure though .. We would do it ALL again to give Riley the chance at Life that he has been given! None of which would be possible without his donor or her parents who made that selfless decision to give another child a chance at life while having to say good bye to their own child. WE ARE FOREVER GRATEFUL.
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior still #BeatingtheOdds Everyday. ❤️♻️💜
#GiftofLife #OrganDonationAwareness #ForeverGrateful
Riley just finished up with his cath and bronchosopy. Dr Rome said everything looked visually good in the heart. Of course we still have to wait for biopsy results.
Dr Josephson said Riley’s lungs also looked pretty good. There were some secretions in both lungs with a little more in the right. The lavage will tell us more. Hopefully it’s from the cold he had and not aspirating. We opted to not biopsy the lungs this year. We have done it every year since transplant which really is out of the norm.
They just placed the impedance probe so we are still waiting to see Riley. Hopefully he’ll sleep a while because he’s already made it very clear he’s not happy about the probe, and will be less happy when he realizes they weren’t able to put it in the side of the nose he wanted.
~ Picture is Riley with the anesthesia team who was escorting him to the cath lab. ~
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior still #BeatingtheOdds Everyday. ❤️♻️💜
Riley had pretesting today. So far everything looks pretty good. Riley has started with some congestion today, and it showed in elevated WBC and some other labs. As long as no other symptoms arise over the weekend we are a go for Monday morning. Fingers crossed!
I emailed Riley’s pulmonary doctor to see if they had a chance to review his CT scan. The next paragraph is her response.
~ I just took a look. Overall looks pretty stable to me. The radiologist noted some mild air trapping, which we have seen before on previous chest CT’s for him. They commented specifically that there is no bronchiectasis or interstitial lung disease, which is great. Overall I think no changes from before!
Monday Riley will have a cardiac cath and a bronchosopy. Gi will also place an impedance probe.
Riley PFT’s and Zometa bone infusion went well!
Next Monday is the dentist and orthodontists.
We are still coordinating Riley cardiac cath, bronchosopy and endoscopy with impedance probe for, hopefully, the first week of March.
Will update when we know more!
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤️♻️💜
Quick update. Just spoke to Dr Ryan (GI). We are going to move forward with scoping Riley in March when he has his bronchosopy and cardiac cath. They will also place a 24 hour impedance probe.
Hopefully we can find a source for Riley’s frequent upset stomach. ❤️
#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤️♻️💜
Riley's Mom Blog 