A Lil' Boy's Journey to Live….

Archive for June, 2018

Visit with Heart Transplant @ChildrensPhila .. ❤

Riley had a pretty uneventful visit with Heart Transplant on Monday.
Blood work .. EKG and Echo all looked Good! Weight is still only 54 lbs but we’ve decided not to make any changes right now as far as nutrition. That may change in 6 weeks when Riley sees Lung Transplant though. For now we know he hangs out below the 5% percentile and that’s where he always was before transplant. He was so beefed up after transplant that we’re still trying to gauge where he is going to fall long term. As long as Riley doesn’t fall off the chart he should be ok.
Riley’s next scheduled appts aren’t for at least 6 weeks. So we are heading into summer on a high note. Riley is finishing up 3rd grade. Excited for family vacation in a few weeks and going to camp in August!
Words could Never express the our Gratitude to Riley’s donor and their family for making it ALL possible. ❤

#CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday.

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