A Lil' Boy's Journey to Live….

Archive for April, 2021

Update .. 💚

Update .. Riley’s genetic testing that was pertaining to his kidneys has come back with no new genetic findings. The thought is that the kidney cysts are related to the previous findings of SMAD2 but aren’t completely sure at this time. Further research is being done.
What does this mean for Riley’s care as far as the kidney cysts? At this time we will wait to see nephrology again until October. People can live with the cysts forever without issue. For others it can turn into a bigger problem leading to kidney disease. We don’t know at this time which way this will go for Riley.
Honestly this is really the case with everything Riley! We just don’t know! So we’ll continue to face each battle as they arise and Riley will continue Loving the life that has been so Generously gifted to him.

CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤♻️💜

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