Archive for July, 2009
Riley is out of his echo.
Everything seemed to look good. It appears to actually be the best echo yet.
Three of the veins looked good, and one looked moderately obstructed.
Mind you the three are still mildly obstructed, but haven’t changed much since
they were last looked at. Dr. Szwast thinks we can wait till the last wk in August to
do another echo. 6 wks will be the longest we have every gone!! We could be on the
verge of something good here. PRAY!!
Soo..tonight Riley stays in the CICU. Its alittle rough because he is in a pod, and not
in a private room, but we got a TV from ChildLife, and he is watching Blue’s Clues on DVD.
I have no idea how the rest of the day or night will go, but hopefully uneventful, and
we’ll go home tomorrow morning!
First let me start by saying I’m sorry for not being better with the updates on Riley!!
That being said……Riley had a Cardiology appt. today. His echo was unsedated and Riley screamed the minute the tech touch him. Sooo…now we will go back next Tuesday for a sedated echo. FUN!
We did learn that Riley is up to 18 lbs. HOORAY!! He is still not up to a full feed, yet, but he is still putting on the weight. Probably because we went from a 24 calorie feed to a 30 calorie.
On another note…..I have a much over due THANK YOU!! About two wks ago Riley’s speech therapist, Chris, stopped by. She said she had something for me to read. Well…..it’s a letter in response to a letter that Chris wrote to the Pray Child Foundation on behalf of Riley. She had asked me months ago if it was ok, and I said yes…thinking it was for them to pray for Riley. The more prayers the better…right! This was a little more then that. She had told them about Riley, and gave them his website. Well….they sent a VERY GENEROUS DONATION to Riley!! I was speechless!! Chris we love you…truly!!! Pray Child Foundation…..Thank You for caring for our son. The kindness of all of you will not go unforgotten!