A Lil' Boy's Journey to Live….

Archive for October, 2018

Appt with Heart Transplant @ChildrensPhila .. 💚

Riley had his appt with Heart Transplant on Monday. The appt went well. Got the flu shot. Riley’s weight is holding steady at 52 lbs. Labs looked good. Except for his Tac level which was pretty high but we’ll lower the dose and check a level again in a few weeks.
Riley’s need for bone health management is still up in the air. We will see orthopedics in November and discuss further with them. In the mean time Riley will have a Dexa scan.
It’s always Great to go to Cardiology because they have been with Riley since the beginning. Everyone is always so Amazed to see Riley and how Wonderful he’s doing. Dr. Lin had even asked if she could bring in a fellow to see and listen to Riley .. This/Their/Our Miracle child who was 5 and a half years out from a heart/lung transplant! We can always count on Cardiology to remind us how far Riley has come! Not that we could ever forget!
While at CHOP we ran into Red Scorpion who is one of Riley’s Favorite wrestlers from the Monster Factory .. Riley thought it was Super cool to see the other side of Mark (Red Scorpion). The nurse who was caring for a child with a trach. Like Riley once had. Certainly made his day!
Riley also got to see one of his transplant buddies Xavier. It was Nice to see X and how Great he is doing. ❤

#CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday .. 💚

Riley went to @WWE .. 😊

Riley went to WWE RAW on Monday night in Philadelphia. Had the Best time Ever!!

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