A Lil' Boy's Journey to Live….

Archive for December, 2022

Cath and Bronchosopy

Discharged from @ChildrensPhila ❤️

@ChildrensPhila ❤️

Having to be in the hospital for #Christmas is never fun, but being able to open a gift that was on the top of your list certainly helps! 🎅
Riley’s fever has not returned. Still continuing the IV antibiotics and stress dose steroids until tomorrow. Assuming nothing changes the plan is to discharge Monday. Fingers Crossed!

#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior still #BeatingtheOdds Everyday.

Riley @childrensPhila for Christmas. ❤️

Zometa infusion @childrensPhila 💙

Visit with Orthopedics @ChildrensPhila 💙

Monday Riley was finally able to get his cast off. He has 6 more weeks in a brace. Second week of January we’ll do a repeat xray, and should be brace free after that.
Now that the cast is off we can move forward with scheduling the dexa scan, and Dr Mancilla would like to do the next round of Zometa infusions in January. After we know the break is completely healed.
Next up is @docbreslerscavitybusters and @appelorthodontics.

#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤️♻️💜

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