A Lil' Boy's Journey to Live….

Archive for January, 2021

Appt with GI @childrensPhila

Riley’s appt with GI went well. Dr Ryan would like Riley to have an endoscopy when he is having his Bronch and Cath in March. As long as Dr Rome (Cath Attending) isn’t concerned we will move forward with that plan. Dr Ryan is also reaching out to a new Attending in ENT, Dr Ruiz, who is specializing in swallowing. Hoping that a fresh set of eyes may have some ideas in regards to Riley’s aspirating. We are open to any ideas being that Riley still can’t drink.
Will update when we know more regarding the scope and Dr Ruiz. ❤

Update on Bone Infusion ..

Riley’s Gift of Life ❤♻️💜

The most Precious gift Riley has Ever received. The #GiftofLife. For Riley that included both Heart and Lungs. Riley’s Angel Heart has Always had Beautiful function. Monday’s ECHO showed that still to be True.
We are Forever #Grateful.
#CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday. ❤♻️

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