A Lil' Boy's Journey to Live….

Archive for May, 2017

Having a Better Day @ChildrensPhila ❤

​Riley is finally having a better day! His fever has been down since late last night. The cough has arrived so we have increased his Albuterol. He tolerated his overnight feed at half strength so the plan is to go to full strength tonight. All goes well and Riley will be discharged Saturday after rounds. Yay!! ❤

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Riley’s still @childrensPhila .. ❤

Not to much to update right now. Riley’s fever has been up and down. Right now it’s down to about 100. A couple hours ago it was over 103. He wasn’t able to tolerate his gtube feed last night so he ended up getting Pedialyte. He seems to do ok eating orally but unfortunately Riley just doesn’t eat enough yet so most of his nutrition comes from his overnight feeds. 

So we will see how today goes. Its really all about just supporting him as he fights through the Paraflu. We have cut his azathioprine dose in half to give his body a little bit more strength to kick Paraflu’s butt!! Will update if anything changes .. ❤

Riley has been admitted to @ChildrensPhila .. ❤

​Shortly after coming home from school on Tuesday Riley stated that he didn’t feel well. Took his temperature and it was up over 102. A call was made to lung transplant and they said to bring him to the emergency dept at CHOP. Many test results are still pending but his white blood cell count was elevated .. Indicating that he’s trying to fight something off. So Riley has been admitted to 8 south. Will update when we know more! 

Please visit Riley’s fb page https://www.facebook.com/Smile4Riley/ .. ❤

 Riley’s First Wrestling Experience .. 😎


Thank you to Glenn Ruth .. aka Thrasher from WWE HeadBangers for inviting Riley and Family to wrestling at The Monster Factory. Needless to say Riley had an Amazing time!!

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