A Lil' Boy's Journey to Live….

Archive for August, 2014

Riley’s EBV Results .. β™‘

Good news … Riley’s EBV count is down to 49,000 from 500,000 on 6/30. We will take it! We do understand a month from now that number could rise again but for Today .. YAY!!

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Visit with Lung #Transplant Team ..

Riley had a visit with the lung transplant team on Tuesday. Overall things went well. Unfortunately blood work wasn’t successful on the first try .. which turned Riley a little Crazy but he got through it like a Champ! All of the lab work looks good although we are still waiting on the EBV.
We are scheduling an 18 months post transplant Bronchioscopy for September.
I will update when we have Riley’s EBV results and plans for his Bronch.

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β˜† .. Down the Deleware .. β˜†

Thank you to Ron and Fran for taking our family on a boat ride down the Deleware River. It was Riley’s first time on a boat. We were a little concerned that he was going to be scared. With his PTSD he is really afraid of things he isn’t familiar with. He Loved it though! Every second of it .. Especially when he got to drive πŸ™‚

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