Riley had his visit with Dr. Hanna today. There were labs drawn. Only for Antibody screening for Transplant though, and that was a lot of blood. She actually had to stick him twice because the first site stopped putting out blood 😦 I was hoping that some of the blood was being used to help figure out what happened yesterday. Although I’m honestly not sure what blood test can be done to determine that, but now a days you never know! After talking with Dr. Hanna there still isn’t a clear answer to what happened yesterday. We know he got a headache which we assumed caused him to vomit which in turn made his Sats drop. My question is why the headache, but better yet how did he recover from the headache when I Never gave him Tylenol? When we got to the ER Sunday Riley was Fine! How? Don’t know and probably never will! Obviously fingers are crossed that we don’t have a repeat episode because that could cause more cause for Alarm. Ugh. The rest of Riley’s visit was fine. He is almost 32Lbs. Yea!
Next cath will be around the end of July ♥
Just to Sum up the pictures below….
Riley does not tolerate anything in his mouth. He hasn’t for years! Obviously we have been able to feed him through his gtube but that did Nothing for Oral Hygiene. This has been a Serious concern of mine with the Team but to them it falls secondary…If even that. The Risk of Infection to have Dentistry come in and clean his teeth is to High for them to even consider it.
That all being said… The last few days Riley has begun to let me in his mouth with a toothbrush!!! Then with Toothpaste!! He has let me brush his Entire mouth… Tongue and All without Gagging Once!!
It Truly Feels Like a Miracle ♥
I Do have some concern of aggravating something in his mouth. I don’t want to cause an infection! I will talk to Hanna on Monday about it.
In the Big picture it is a Wonderful.. Monumental.. Step for Riley
Riley has Breezed through Cath #22 ♥ Once again only the LLPV was dilated. Dr. Rome didn’t feel the RUPV needed any intervention! Riley also had Minimal reaction to the Contrast this time around!! We’ll take It ♥
Thank You ALL for Your Continued Love and Support for Riley and Our Family ♥ ♥