Today Riley had appointments with both heart and lung transplant teams, and with Dr Drant who is Riley’s Loeys-Dietz cardiologist.
Overall all of Riley’s appts went well. Echo, EKG and pulmonary function tests are all within Riley range. Some of the kidney function labs were still elevated, but we’ll wait to hear from nephrology to see if we just continue to monitor.
Riley’s next big appt is for his endoscopy (via gtube site) on July 1st with Dr Ryan.
This week .. Riley finishes his freshman year of high school! Can you believe it?! Then onto what should be an Awesome summer for Riley! Family vacation. Heart camp. Liberty Lake Day Camp. Yay!
CHD #Heterotaxy #LoeysDietz #Transplant #Warrior still #BeatingtheOdds Everyday. ❤️♻️💜
Riley's Mom Blog 
Leave a comment