A Lil' Boy's Journey to Live….

Riley’s transplant appointments on Monday went well.
The only real concern is for Riley’s weight. He lost 3 pounds since October. Riley does eat orally but just not enough. It still doesn’t come naturally, and Riley is a pretty picky eater. So the decision was made to add a gtube feed to his school day. He already goes to the nurse for water so we will add a Peptamen.
Riley’s next appt is with orthopedics next week to see how his arm is healing. Hopefully they’ll be able to remove the cast!
Till then .. Happy Thanksgiving!! 🧡💛🧡💛

(Pic is of Riley and one of his favorite phlebotomists Mitch.)

#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday. ❤️♻️💜


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Tag Cloud

%d bloggers like this: