A Lil' Boy's Journey to Live….

Riley had an appointment Tuesday with Dr Mancilla in Endocrine (bone health). Riley is currently scheduled for a Dexa scan mid January and his Zometa infusion towards the end of the month. Apparently Riley’s last scan showed great improvement in his bone density. So much so that instead of another infusion in 6 months we may wait a year. Of course we’ll see how the scan in January looks. It’s also possible we may do another infusion in 6 months but half the dose. We shall see. Before we left Dr Mancilla ordered a repeat xray of Riley’s thoracic spine to check his previous fractures and to be sure that there isn’t any new ones. In all it was a good appt.
As far as Covid .. Riley is doing Amazingly Well! He hasn’t needed a breathing treatment in a few days. He never complained of body aches like Dad and Christian and his fever always remained low after leaving CHOP. Oddly because Riley is immune suppressed and because he got some assistance at CHOP .. he seemed to do better then most who are symptomatic. As everyone should know though you can get COVID again. So we are right back to living with precautions as we have been doing since the beginning of March.

Hopefully 2021 will be a Better year for All!!

CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday. ❤♻️💜

Comments on: "Appt with Endocrine (bone health) @childrensPhila" (1)

  1. This comment is for Carol (Mom) she is one of the bravest, strongest persons I know. No matter what comes her way she takes care of it. Riley is lucky to have her as a MOM!!

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