A Lil' Boy's Journey to Live….


Update .. Riley is doing pretty good! He thankfully hasn’t had a fever in a couple days. Spoke to lung transplant and we will discontinue the higher dose steroids and go back to maintenance dose and instead of doing the breathing treatment a couple times a day .. it will be as needed.
Riley’s brother Christian is also doing better. Still has loss of smell and taste but we’ve been told that could actually last for a while but isn’t considered a symptom when it comes to returning to the world.
Dad is doing better then last week. Still has some body aches and today lost his sense of taste and smell but everyone’s fever is gone!
Thankfully this SEEMS to be the extent of Covid in the O’Brien household. Assuming nothing changes we have been pretty lucky! Yes we are quarantined. Yes we are out of work. Yes Riley needed some support from CHOP but people are needing long term hospitalization. Ventilator. People are dying. Please wear your mask and wear it right. We will all get through this virus but we need to do it together. Love Your Neighbor.
Thank you all for being on Riley’s Journey with us. ❤

CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday. ❤♻️💜

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