A Lil' Boy's Journey to Live….

CT Results .. 💚

Update .. Dr Goldfarb called with Riley’s CT results. Wonderful news .. there was Improvement from previous scans!! The BO (Bronchiolitis Obliterans .. chronic rejection) has actually gotten better! We didn’t realize that was possible but it’s because Riley’s not drinking and therefore not aspirating. Of course not drinking is not ideal and Riley reminds us pretty much everyday how unfair it is but he too is Happy to hear that it has lead to improvement in his lungs.
We will take Good news Any day!!!

CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday. ❤♻️💜

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