A Lil' Boy's Journey to Live….

Update .. πŸ’š

Riley’s heart has zero rejection.

Riley’s lung results show A1 rejection. This level of rejection will not be treated unless Riley becomes symptomatic.
The lavage findings showed that Riley’s aspirating. Where the numbers from Riley’s bronch in August were lower; Monday’s were higher then they were last March when we first thought there may be aspiration. Given that we exhausted every possibility over the last year to find a cause for the aspirating it ultimately comes down to technique. Yes Riley’s swallow study a few weeks back looked good but with every sip he was extremely close to aspirating. Obviously once we came home his technique wasn’t as good and he was/is aspirating. This means Riley will need to go back to strictly gtube hydration.
We have not broke this news to Riley yet. He is going to be devastated! We will continue to try and overcome this but it may be a matter of Riley maturing and completely grasping the importance of technique.
Please keep Riley in your thoughts as we prepare to share this news with him.

CHD #Heterotaxy #Transplant #Warrior #BeatingtheOdds Everyday. β€β™»οΈπŸ’œ

Comments on: "Update .. πŸ’š" (1)

  1. Prayers for the little one. Bruce Mills let me know. I will be praying and interceding on Riley’s behalf. God bless, stay strong, trust God in EVERY aspect!

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