A Lil' Boy's Journey to Live….

Riley’s triple scope was done on Thursday. Unfortunately there isn’t a cleft. We will have to wait till next week for the rest of the results from pulmonary and GI. Now we will go back to plastic surgery and see if surgically repairing Riley’s raised palate could help. Also going to schedule a MRI of the brain to see if there’s some abnormality that could be causing his delay in swallowing. This will be Crushing to Riley but we can technically tell him we’re still gonna try plastics, MRI etc. Just keep buying a little more time until we need to make quality of life decisions. ❤♻️💙~ Riley is still working through the whole process of getting an IV but he wanted to share how Great he is at getting it out with a little help from #OldTownRoad .. 😉

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