A Lil' Boy's Journey to Live….

Riley had his Swallow Study today. Unfortunately it did show that Riley is aspirating when he drinks. At first it was thought to be thin liquids but now they are not sure if he’s also aspirating thickened liquids. Given the results Riley can not take Any liquids by mouth until further notice. As you can imagine Riley isn’t happy about not being able to drink. The team will discuss the results and get back to us on Wednesday with a plan. As mentioned in a previous post aspirating can cause chronic rejection. Riley has had mosaic air patterns in his lungs for a couple years now. At his last CT in March the mosaic air patterns were noted as being more prominent. Not sure what all of this means moving forward but will update when we know more. ❤

~ Pic is from while waiting to do the swallow study.

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