A Lil' Boy's Journey to Live….

Not to much to update right now. Riley’s fever has been up and down. Right now it’s down to about 100. A couple hours ago it was over 103. He wasn’t able to tolerate his gtube feed last night so he ended up getting Pedialyte. He seems to do ok eating orally but unfortunately Riley just doesn’t eat enough yet so most of his nutrition comes from his overnight feeds. 

So we will see how today goes. Its really all about just supporting him as he fights through the Paraflu. We have cut his azathioprine dose in half to give his body a little bit more strength to kick Paraflu’s butt!! Will update if anything changes .. ❤


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