A Lil' Boy's Journey to Live….

Sometimes it’s the little things ~ Riley has asked recently about trying to take his meds by mouth. He has always taken them via gtube. I remembered a conversation with the heart team were they mentioned a med that the heart transplant kiddos couldn’t starting taking till they were 8 .. per the FDA .. that was a good transitional med. So I contacted transplant and they sent over a script.
Riley is Super Excited to share that he took his First med by mouth today! On the first try!! It is called Pravastatin and he took it in pill form!!
So moving forward we will continue with the Pravastatin nightly and assuming he continues to do well we’ll slowly start to transition his other meds to pills.
Yay for Riley Sometimes it’s the little things ~ Riley has asked recently about trying to take his meds by mouth. He has always taken them via gtube. I remembered a conversation with the heart team were they mentioned a med that the heart transplant kiddos couldn’t starting taking till they were 8 .. per the FDA .. that was a good transitional med. So I contacted transplant and they sent over a script.
Riley is Super Excited to share that he took his First med by mouth today! On the first try!! It is called Pravastatin and he took it in pill form!!
So moving forward we will continue with the Pravastatin nightly and assuming he continues to do well we’ll slowly start to transition his other meds to pills.
Yay for Riley .. πŸ˜ƒ

β€πŸ’šπŸ’œπŸ’™πŸ’›β€πŸ’šπŸ’œπŸ’™πŸ’›.. πŸ˜ƒ

β€πŸ’šπŸ’œπŸ’™πŸ’›β€πŸ’šπŸ’œπŸ’™πŸ’›

~ Riley has been scheduled for his next Bronchosopy on June 1st.

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Comments on: "Sometimes It’s the Little Things .. πŸ’š" (1)

  1. Grand Mom Rodgers said:

    OMG…this is terrific news!!! I think the last time I was their I mentioned Riley taking his med’s in pill form…and now it has started. Tell Riley I am VERY PROUD of him, and keep up the good work.
    GrandMom

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