A Lil' Boy's Journey to Live….

We were waiting on the Blessing from Riley’s Transplant team at CHOP before posting the below …

We are very close to celebrating Riley’s 6th Birthday .. Yay! On Riley’s 5th Birthday he was one month post heart/lung transplant with ongoing fevers and on his second round of renal failure. Nevermind becoming vent depend and planning his upcoming Tracheostomy.
This year Riley is Home! No fevers ..  No renal failure .. No vent and No more Trach! He actually knows his Birthday is Friday whereas last year he had No idea it was his Birthday.
Soo .. This Sunday .. with Riley’s teams Blessing .. We are heading to Chuck E. Cheese! Riley has never been before. It has always been way to much of risk with all the kids and germs flying around. Those same risks are still there but we are going to use precautions. Riley will be masked and chased around with hand sanitizer, but the fact that I just said we would be CHASING Riley around makes it worth it! For more then 5 years you never had to worry about chasing Riley anywhere but now he is almost like having a toddler! He is everywhere and into everything! Doing .. Seeing .. Exploring all the things he never had the Energy to do before!
He deserves a day to run around with all the other kids! To just be a kid! I think you all would agree 🙂
When the day is over we will scrub down and pray for the Best but for Sunday .. Riley gets to be a Normal little boy celebrating his 6th Birthday!

Visit Riley’s FB page for more info ..


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