A Lil' Boy's Journey to Live….

Update …. Riley’s EBV was rechecked on Monday. He has gone from 372,000 back down to 176,000. After consulting with Oncology the team is comfortable in waiting to do a PTLD work up. The thought being he will eventually need to have the CT scan done and since his numbers are trending back down they rather wait. That being said .. When Riley has his pretesting in a few weeks we will check his EBV again. If it is elevated .. We start the whole PTLD conversation again. There really is no good answer. Children have been Dx with PTLD with copies at 110,000 and children have had number over a million and not been dx with PTLD. 
Thanks as Always for all of your Continued Love and Support for Riley and Our Family .. We Journey On .. ♡♥


Comments on: "Update on Riley’s EBV .. ♡" (2)

  1. Hi Little man . Carol and family . Its always something huh,but the main thing is to get over the bump in the road .always keep my hero in my prayers as well as you guys to. Nice to see my little friend so happy,one thing for sure for a little man hed gone threw what most men have never gone threw and yet Riley is always got a smile 🙂 good job Riley stay strong my friend !

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