A Lil' Boy's Journey to Live….

Riley’s updates from Bronch/Cath/ENT ..

Just spoke to Dr Javia. He is thrilled with how Great Riley’s airway looks! He is going to downsize his trach and cap it. This is obviously Wonderful news however he won’t be Decannulated right now. Dr Javia wants to see Riley in his Airway clinic October 14th. He expects that things will look just as great in a month. At that time he will schedule him to come back and stay in the PICU for Decannulation. So even though we can’t Decannulate today .. We should able to Decannulate in October. Now Pulmonary is with him and when their done Cardiology will go in .. ♡♥


Spoke to Dr Kreindler. He says Riley’s lungs look good. He was able to get good biopsies which will take a few days for results. His lower lobes are clearer then previous bronches. He is pleased with how Riley is doing. He says he is continuing to Beat the Odds! Dr Dori is with Riley now doing the cath.Still waiting to see if we will be able to go home today. ♡♥


Riley is back in the CPRU. Since they went through the neck its a two hour flat time. His trach will be downsized and capped and we will be going Home! ♡♥


Comments on: "Updates from Riley’s Procedures .. ♡" (1)

  1. As I tried to go to sleep Saturday evening 09/14/2013after the 1000 year storm I could not get Riley out of my mind so I got out of bed & suggested an Auction that I would donate artworks to & to get help from Donald Trump perhaps he could arrange for Sotheby or other Auctioneer to have an auction for Riley I have not heard from the Donald Trump group they
    seem very busy giving President Obama advise on how to run the Country if MR Trump were
    truly interested he could run for President in 2016 he seems to be more about promoting his enterprises & cable shows than to actually do something worthwhile President Obamas programs are not all that I think they should be at least he is doing something Donald Trump
    reminds me of my grandfather a back seat driver telling you what your doing wrong when he sits in the back and cannot drive the car because he is not in the drivers seat if someone is
    willing to help we can make this 5 year old boys life a lot easier I hope one of the entertainers has an interest in someone other than there own self serving interests .

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