A Lil' Boy's Journey to Live….

Bug In the Air .. ♡

Riley had his visit with Pulmonary on Tuesday. In the Big Picture Riley is doing Good! For example .. Riley’s first five years of life he was barely on the growth chart .. He was just kinda holding a steady line across the bottom of the chart. Now .. his line goes Straight Up! Literally! So much so that we cut another 10% out of his daily feeds. Another good thing because it’s less time he spends hooked up to something!
On another note .. Riley has been more junky then usual. Little running nose but definitely some secretions trapped below. That being the reason for the extra chest PT. I had called the team on the weekend about starting Riley back on Zyrtec. He was on it before transplant but it never got added back into the mix post transplant. They agreed given how Riley was presenting.  On Tuesday we sent a culture and started Riley on Ciprofloxacin. We learned today that it’s Rhinovirus. To most of the population it’s equal to a cold. To people like Riley it could carry a lot more risk then the common cold. Fingers crossed though that we can keep it under control. The decision was made to still keep him on the Cipro. Since we didn’t culture very far there is still the possibility of it also being something else. Possibly the Pseudomonas that Riley was positive for while still inpatient. For now we’ll continue with the chest PT and extra breathing treatments and Cipro and Pray that Whatever is Hanging around Leaves! Especially with Riley’s Bronch approaching … We need his Airway looking Beautiful .. ♡♥

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Comments on: "Bug In the Air .. ♡" (1)

  1. HEY LITTLE MAN ,SORRY TO HEAR YOU ARE NOT FEELING WELL , YOU ARE ALWAYS STILL IN MY PRAYERS .. AND LOOK HOW BIG YOU ARE , IM SO GLAD YOU ARE DOING GOOD, HANG IN THERE , ITS HARD ITH WEATHER CHANGE ALLERGYS, THINKING & PRAYING FOR YOU ALL ❤

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