A Lil' Boy's Journey to Live….

Riley’s labs scheduled for Tuesday had to be rescheduled. There was some nursing confusion because our first 2 weeks of 24 hour nursing was ending today. CHOP requested a continuation of the 24 hour nursing but the insurance company had yet to come back with an answer. Our nursing agency had already agreed to eat the extra 8 hour shift and send 24 hour nursing Tuesday even without an answer from the insurance company but somehow that information never made it to our nurse. 
So if anything Riley got a Lil reprieve from labs today. We will face the Beast again on Thursday .. ♡♥

PS .. Insurance agreed to continue the 24 hour nursing! Without a Fight! That is Amazing yet reminds me of how Fragile Riley’s situation really is .. ♡



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