A Lil' Boy's Journey to Live….

Riley’s next cath has been scheduled for November 7th. Feel like we Just did this!
There is a slight possibility that the cath could be moved up because Riley’s reflux has gotten pretty bad. I doubt this will happen, though, because Dr. Rome already Hates cathing every 8 weeks because of the extreme risk! I don’t see him making it sooner but we’ll see.
I will update if anything changes. Hugs to you All for Caring about Riley and this Journey he is on. Thank You…..

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Comments on: "Riley’s Next Cardiac Cath…." (1)

  1. Carol, is Riley still taking any formula? Have you ever tried Vivonex with Micro lipids added? Jilly’s reflux got significantly better, besides it helping her to gain tons of weight. I know Riley’s wgt. gain is related to the heart issues… but thought I would throw it out there, as we had tried everything before the vivonex and nothing else worked for Jilly! You and Riley are always in my prayers!!! Heart hugs!

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