A Lil' Boy's Journey to Live….


Riley saw Dr. Hanna today. Pretty routine visit. Riley does weigh 24 lbs now!! So he’s growing….slowly…but growing all the same!

Of course the conversation of cathing Riley was had. It’s really such a hard thing to decide on….for u…s and the doctors! If we go by Riley’s history then he is due if not over due for a cath. The problem is history has continued to move forward there for changing other things with Riley. Yes…he most likely needs intervention…he always does, but because of the changes to his antimony every time we do a cath it’s more dangerous then the last! Dr. Hanna spoke seriously today about Riley possibly having a stroke during the Cath. He did kinda then down play it some and said….. it could be a minor stroke, but a stroke of any nature will result in him having to be removed from the transplant list for 6 weeks!
Actually if you read back to older posts I’ve written I think they will pretty much read the same!

Sooo what to do? Do we not cath him and risk the strong possibility of his remaining veins totally occluding off there for leaving no connection between his heart and lungs! That would result in Riley needing to go on ECMO or heart-lung bypass. That is a very Short term solution that would lead us to having to make even harder decisions. Or do we cath him and pray to God that his vein doesn’t rupture or cause Riley to have a stroke? Its like a balloon that has been blown up over and over again. At some point its going to Pop!
Decision…..Riley will be Cathed within the next 2 weeks. To sit and do nothing and Know what the result of that will be really isn’t a choice for me! Yes…Riley’s risks for a cath are through the roof, but cathing him will give him a chance….buy him time till he can get his New organs! Everything with Riley is a risk, but he’s our fighter and the fights not over! I will post when I know when the Cath is.

One last note…..Riley did have an offer last night! Hooray! Obviously he didn’t get transplanted, but an offer gives us Hope! Tomorrow will be one year Riley has been waiting….We/He are Ready ♥




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