A Lil' Boy's Journey to Live….


Today was a routine visit to see Dr. Hanna. Honestly there is not much to report health wise. (That’s a Good Thing) Of course labs were drawn, but we even have our girl for that, Regina, picked to stick Riley.(When you get to know the who’s… who at CHOP then you began to figure out who you want and who you don’t!) There weren’t any results back while we were there except his hemoglobin’s that were like 18.5. Yes to anyone who knows that is high, but for Riley his are Always elevated. He will have labs again in 2 wks. Fun.
Dr. Hanna said his main purpose, at this point, in seeing Riley every 2 wks is to be sure that he is Healthy and Ready for Transplant!!
His Pulse Ox was in the low 70’s, but he has been trending downward. That is part of the reality of waiting for transplant. Watching your child get sicker. He will most like get Cathed again after his next visit to see Dr. Hanna in 2 wks.
On another note…while at CHOP we ran into our Original Podmates… The McClains. They have since moved to upstate NY, but we are at CHOP pretty often and we have been lucky enough to see them there on the times that they have brought their son Ryan down. Rebecca and Sean were at CHOP the day I found out that Riley was going to need a heart-lung transplant. Ryan was having an MRI the same day as Riley’s cath. I am so Grateful to Sean and Rebecca for that day. I was a Mess….we had just been told…my family hadn’t arrived yet and there I was crying to them! So Thank You Guys ♥ Anyway..it was nice to see them today even though it was brief. However…Never got to say Good Bye….So Rebecca…Until next time ♥
Now back to waiting ♥ I said to Dr. Hanna today that November will be a year that Riley has been waiting. He said its hard to believe that its been that long, but that Riley is ok and is READY! He said we could be waiting longer then November but that its OK. Sooooo….OK ♥ What else can one say? Cant make the organs appear ♥
Thank you all for your continued Love and Support…… One Day … when he is Old and Gray Riley will know how much he was Loved ♥


Darren, Rebecca, Ryan and Riley



Riley with Dr. Hanna and Laura (NP)



Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

Tag Cloud

%d bloggers like this: