A Lil' Boy's Journey to Live….


Home from Children’s Hospital of Philadelphia with Riley. We will go back next Monday. Nothing special happened today. We addressed the stoma issue and we’ll keep using the Steroid cream on it.

Next week we’ll do a chest x-ray and possibly schedule the next Cath.  Riley’s pulse ox is in 70%’s on 3L of O2, but that’s all we have till transplant…O2 and Cardiac Caths ♥


Getting some work done as he waits for Dr. Hanna…


Riley and Laura…one of the N.P.’s with Cardiac Transplant Team


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