A Lil' Boy's Journey to Live….


Riley has appts tomorrow at CHOP to see the Transplant teams (heart-lung) and to see his general surgeon because of  granulation scar tissue forming around his stoma (hole where the gtube is placed).  Its said to be common so hopefully it won’t be an issue. We are already treating it with steroid cream they called in for us.
Once again I pray for an Uneventful Day ♥
A Cardiac Cath is Creepin’ up if there’s no transplant in the next few weeks so we’ll see what happens ♥

Riley doing a lil’ reading…Ok…and watching Dora…:-)


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