A Lil' Boy's Journey to Live….

update 10/20

Today Riley went to his Primary for a well visit.  Only good thing that came out of it was I had them check his pulse ox, and it came up at 80%.  If it reads 80% on Wednesday at CHOP we are in good shape.  We will still be able to put off the stents.
In other news….Riley needs to start getting a Synagis shot every month.  We thought he would get his first shot today, but apparently it is very costly so they don’t keep it on hand.  I would have to call the ins. company and have them send it to us, and we take it to them to be admin.  So I called both ins. company, Aenta and Horizon who does our RX, and they said it’s not covered.  This shot costs over $3,000 a month.  So now we have to have CHOP send an enrollment referral to Horizon’s speciality pharmacy, and they will review it and get back to us if they will cover it, and if so how much.  I pray they let us pay our usual copay of $25.00.  If they come out with some outragous figure I’m not sure what we will do.  All we can do for now is keep our fingers crossed that this works out in our favor.  Something has to!
Also…next Monday Riley will be evaulated by Early Intervention.  They will come out to the house.  After their evaluation they will tell us if he is eligable.  This would help with his sitting up, rolling over things of that nature that he is behind in.
Next thing is CHOP on Wednesday.  Lets pray that things are still ok.  We know his veins are obstructed, but we need his body to continue to handle it!

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