A Lil' Boy's Journey to Live….


Riley’s Echo today seem to go the way they thought it would.  Of his four Pulmonary veins, two are obstructed AGAIN!  These are the same two that Dr. Rome used the cutting balloons on last month.  The only difference this time is that the obstruction didn’t appear to be affecting his number.  His pulse ox was mid 70’s to mid 80’s.  Last time his pulse ox had dropped to high 60’s to low 70’s.  So what does this mean?  It means that the stents are next.  Dr. Szwast is going to spk to Dr. Rome tomorrow, and see when he thinks it should be done.  After the stents are placed they will then discuss Riley in conference and decide what should be next.  Stage 2 or listing for transplant.
On another note….he gained alittle weight.  He went up to 12lbs. 2oz.  She was glad to see some gain, but I told her that he still vomits, ALOT.  She gave us a referral to see a GI doctor.  She also suggested he receive some progressive therapy to help with some of his skills he is falling behind on like sitting up.
Soo….I will wait for the call tomorrow from Dr. Szwast to see what Dr. Rome says.  I will update when I know more.
PS…Thank you to Jackie for keeping me company today.  Although I know she was really there for Riley not me!  Love her all the same:)

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