So…we just got home from CHOP. We are back where we were in the beginning of July. Riley’s Pulmonary veins appear to be obstructed…AGAIN! I am waiting for Dr. Szwast to call me. She was waiting to talk to Dr. Spray about the next step. She believes it will be a Cardiac Cath., but then what? He may need surgery, again, on his veins, or he may get listed for a transplant. Another wait and see! Just can’t believe there is obstruction again…so soon. More scar tissue!!
On another note….his BP was 116/72, wgt. 10 lbs 14 oz., hgt. 22.5 in. His pulse ox is down in the low 70’s because of his obstruction.
I’ll update after I know more!