A Lil' Boy's Journey to Live….

update

Today Riley had a weight check.  It was rather disappointing.  He only gained an ounce, and even that is pushing it.  He is barely even on the chart when it comes to percentiles.
So now we wait and see what happens next wk when we go back to CHOP.  His meds. may be altered, may move up to the 27 calorie diet, from 24, may be admitted.  Not to mention we have the Echo next wk, too.  So…yeah, I have a little anxiety about Wednesday.  Keep you fingers crossed that the Echo is ok, and that we able to do something, at home, to help him gain weight.  The first thing that needs to be done is stopping the throwing up.  The big question is how is that going to be done.  We have already tried multiply things.
I’ll update you later!
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