A Lil' Boy's Journey to Live….


Today Riley had his post opt appt. with Dr. Szwast.  Jackie came with us.  Riley is doing good.  His BP was 102/62, heart rate was 135, and Pulse ox. was 92%!  His weight was 10 lbs. 2 oz. (which we will have checked Friday at his primary)  Dr. Szwast removed the stitch from his chest tube.  I also asked her to tell me exactly what Riley has wrong with his heart.  Soooo….Riley has Complex Congenital Heart Disease….Heterotaxy Syndrome (Asplenia Type)…..Total Anomalous Pulmonary Venous Return (TAPVR)(Infradiaphragmatic)….Single Ventricle….Right Ventricle to Aorta with Pulmonary Atresia….Bilateral Superior Vena Cava, and Malrotation!  Did you get all that??
She said that Dr. Spray will probably want to do his stage 2 surgery closer to 8 months instead of 6 months.  All is decided by Echo and Caths in the end, though.  Riley will have another Echo at his next appt in 3-4 wks.
We also saw Riley’s old pod mate, Ryan today.  He looked great with his chubby self.  Becca had him here from upstate NY for his Echo.  Ryan is having his stage 2 August 13th.
Ok….well have to run…keep praying!!

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