As of today I am 27 wks. pregnant. We found out in August that I was pregnant. The first 5 months were very uneventful. My OB appts. were all good. The heart was good, and I was feeling good.
At 19 wks. I went for my first ultrasound. They said everything seemed ok, but they couldn’t get all of their images. They suggested for me to come back in a couple wks.; when I was a little further along. So I went back at 22 wks., and again they said that they were having trouble seeing all of the views they needed. At this point it was time for my next OB appt. He decided to send me for a level 2 ultrasound at the ATU at Virtua Hospital. He said that a level 2 was very detailed, and that they would be sure to see everything that they needed. At 23 wks. I went for my level 2 ultrasound. This appt. would change everything. The doctors at the ATU told me that they were suspectful of Heterotaxy Syndrome. They explained what they believed to be wrong with the baby’ heart and abdomen. The doctors wanted me to come back and have a fetal echo ASAP. I scheduled my echo for a couple of days later, and in the mean while reached out to Children’s Hospital of Philadelphia for a second opinion.
When I returned to the ATU at Virtua for my echo, there DX was the same. The Ped. Cardiologist that I saw was not very hopeful. He said that the condition that the baby had was rare, and that they did not have much success with it. He gave a 50% survival rate for the first year. This was hard news to accept!